Understanding
Okur-Chung Neurodevelopmental Syndrome
Informational Videos
Parent Education Webinar Series - Alternative Communication 101
Q&A with Simons Searchlight about our natural history study
How to read your genetics lab report (gene change)
Dr Wendy Chung explains, "You must represent yourself in these studies."
Learn how to complete your Simons Searchlight account
Families partnering with scientists
Music Therapy 101
Reed Sisters Face Okur Chung Diagnosis
RARE HUMANS: Turning Hope into Action
Equine Therapy 101
Growth Hormone & OCNDS, 2022
Additional Q&A from the 2022 Conference
Rare Disease Day
Meet Dr. Rushing June 2023
Types of Genetic Testing and Variants of Uncertain Significance