Informational Videos

Parent Education Webinar Series - Alternative Communication 101

Q&A with Simons Searchlight about our natural history study

How to read your genetics lab report (gene change)

Dr Wendy Chung explains, "You must represent yourself in these studies."

Learn how to complete your Simons Searchlight account

Families partnering with scientists

Music Therapy 101

Reed Sisters Face Okur Chung Diagnosis

RARE HUMANS: Turning Hope into Action

Equine Therapy 101

Growth Hormone & OCNDS, 2022

Additional Q&A from the 2022 Conference

Rare Disease Day

Meet Dr. Rushing June 2023

Types of Genetic Testing and Variants of Uncertain Significance