Understanding
Okur-Chung Neurodevelopmental Syndrome
Parent Advisory Board
Parent Advisory Board advises our Board of Directors, brainstorms ideas, and shares insights from the parent perspective related to OCNDS.
Eligibility Requirements:
- Open to international OCNDS community, must be English-speaker
- 2-year commitment
- 21 years of age
- High school or equivalent graduate
- Emphathetic, comfortable advocating for others, familiar with team projects
- Parent or caregiver of individual with OCNDS (must be legal guardian)
See who is serving on our Parent Advisory Board.