Skip to main content
  • About OCNDS
    • What is OCNDS?
      • FAQs
      • Informational Handouts
    • For Clinicians
      • Clinician Information
      • How to Help Patients Access Genetic Testing
      • Project FIND-OUT
    • About CSNK2A1 Foundation
      • Boards
      • Staff
      • Transparency
    • News & Updates
      • Newsletters
      • In The Press and Media
      • Our Voice
    • OCNDS Compassion Initiative
    • FDA Patient Listening Session
  • For Families
    • OCNDS 101
      • Common Questions
      • What is a VUS/VOUS?
      • OCNDS Worldwide Cases
      • Recommended Treatment
      • Symptom Checker
      • Newly Diagnosed
    • Get Involved
      • Family Research Opportunities
      • Become a Regional Ambassador
      • Join the Parent Advisory Board
    • Resources
      • Research Explained
      • Science Snapshots
      • OCNDS Awareness Card
      • Transition to Adulthood Resources
      • Adults with OCNDS Information & Resources
      • Recommended Treatment
      • Registry Dashboard
      • OCNDS Clinician Directory
      • Once Upon A Gene Podcast
      • Videos
    • US Resources
      • Guardianship
    • Find Your Community
      • The Faces of OCNDS
      • Contact Registry
      • Family Stories
      • OCNDS Family Zoom Calls
      • #MilestoneMondays
  • For Researchers
    • Research Resources
      • Published Research
      • Research Toolbox
      • CK2 substrates: Brain
      • Research Strategy
    • Grants
      • Funding Opportunities
      • Funded Research
    • Current Initiatives
      • Simons Searchlight
      • TGEN OCNDS Research Program
    • Get Involved
      • Quarterly Scientific Roundtable
      • Conferences
      • Industry Partnerships
  • Take Action
    • Donate
      • Donate Now
      • PayPal Giving Fund
    • Events
      • Golf Tournament
      • 2025 Conference Sponsorship
      • Registration 2025 Conference
    • Participate in Research
      • Roles in Research
      • Natural History Study
      • Sample Collection
      • Brain Donation
      • Citizen Health
      • Family Research Testimonials
    • Advocate
      • Volunteer
      • Share Your Story
      • OCNDS Awareness Day
  • Contact Us
  • Shop
(415) 483-2488
CSNK2A1 Foundation Logo

Understanding
Okur-Chung Neurodevelopmental Syndrome

Donate
CSNK2A1 Foundation Logo

Understanding
Okur-Chung Neurodevelopmental Syndrome

  • About OCNDS
    • What is OCNDS?
      • FAQs
      • Informational Handouts
    • For Clinicians
      • Clinician Information
      • How to Help Patients Access Genetic Testing
      • Project FIND-OUT
    • About CSNK2A1 Foundation
      • Boards
      • Staff
      • Transparency
    • News & Updates
      • Newsletters
      • In The Press and Media
      • Our Voice
    • OCNDS Compassion Initiative
    • FDA Patient Listening Session
  • For Families
    • OCNDS 101
      • Common Questions
      • What is a VUS/VOUS?
      • OCNDS Worldwide Cases
      • Recommended Treatment
      • Symptom Checker
      • Newly Diagnosed
    • Get Involved
      • Family Research Opportunities
      • Become a Regional Ambassador
      • Join the Parent Advisory Board
    • Resources
      • Research Explained
      • Science Snapshots
      • OCNDS Awareness Card
      • Transition to Adulthood Resources
      • Adults with OCNDS Information & Resources
      • Recommended Treatment
      • Registry Dashboard
      • OCNDS Clinician Directory
      • Once Upon A Gene Podcast
      • Videos
    • US Resources
      • Guardianship
    • Find Your Community
      • The Faces of OCNDS
      • Contact Registry
      • Family Stories
      • OCNDS Family Zoom Calls
      • #MilestoneMondays
  • For Researchers
    • Research Resources
      • Published Research
      • Research Toolbox
      • CK2 substrates: Brain
      • Research Strategy
    • Grants
      • Funding Opportunities
      • Funded Research
    • Current Initiatives
      • Simons Searchlight
      • TGEN OCNDS Research Program
    • Get Involved
      • Quarterly Scientific Roundtable
      • Conferences
      • Industry Partnerships
  • Take Action
    • Donate
      • Donate Now
      • PayPal Giving Fund
    • Events
      • Golf Tournament
      • 2025 Conference Sponsorship
      • Registration 2025 Conference
    • Participate in Research
      • Roles in Research
      • Natural History Study
      • Sample Collection
      • Brain Donation
      • Citizen Health
      • Family Research Testimonials
    • Advocate
      • Volunteer
      • Share Your Story
      • OCNDS Awareness Day
  • Contact Us
  • Shop

Conferences

Upcoming OCNDS Conferences 

2024

List of Services

  • September 9-12, 2024:

    Casein Kinase 2 Conference, including OCNDS-focused sessions 


    Conference link: uni-muenster.de/CK2-2024/index.html 


    Dr. Rushing will be presenting on the OCNDS Research Roadmap

    Item Link List Item 2

2025

List of Services

  • July 17-20, 2025:

    OCNDS Scientific and Family Conference, Embassy Suites Denver Central Park (4444 N. Havana Street, Denver, CO 80239)

    Item Link List Item 3

Conferences with Foundation Attendance

2024

List of Services

  • April 29th-May 1:

    Global Genes Rare Drug Development Symposium

    Item Link List Item 1
  • May 13-17:

    Sanford PPALs PACT Course

    Item Link List Item 2
  • June 26-29:

    United Mitochondrial Disease Foundation

    Mitochondrial Medicine Conference

    Item Link List Item 3
  • September 9-11:

    International CK2 Conference

    Item Link
  • October 5-9:

    Society for Neuroscience

    Item Link
  • December 6-10:

    American Epilepsy Society

    Item Link

Past OCNDS Conferences 

2022

List of Services

  • September 25, 2022:

    Scientific and Family Conference (in partnership with Simons Searchlight) – videos available here.

    Item Link List Item 1
  • August 4-7, 2022:

    Annual Family Conference (in partnership with Simons Searchlight)

    Item Link List Item 2

2021

List of Services

  • July 30 and August 6-7, 2021:

    Simons Searchlight Virtual Family and Research Conference – videos available here.

    Item Link
Contact Us
A black and white drawing of a paper airplane on a white background.

Sign Up for Our Newsletter

CSNK2A1 Foundation

We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We are a 501(c)(3) non-profit organization.
EIN #82-4220939.

Contact Information

Address: 1929 Van Ness Avenue, San Francisco, CA 94109


Phone: (415) 501-0147


Email: info@csnk2a1foundation.org

Disclaimer

The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...

Free Genetic Testing | FAQs | Contact Us | Contact Registry

© 2025 

All Rights Reserved | CSNK2A1 Foundation

Privacy Policy | Terms of Use

Share by: