Understanding
Okur-Chung Neurodevelopmental Syndrome
Conferences Videos
2022 Simons Searchlight Annual Family Conference
Plenary Welcome with Dr. Wendy Chung
Managing Challenging Behaviors: A Q&A Panel Discussion
Planning for a Good Life: Using Charting the LifeCourse to Map Out a Successful Future
Promoting Learning and Communication in Children with Limited Language
Self-Care for The Caregiver: Why it Matters and How to Cultivate Opportunities to Make It Possible!
Plenary Closing: A Fireside Chat
CSNK2A1 Genetic Community Talks
2021 Simons Searchlight Virtual Family & Research Conference
Genetic Therapies for the Neurodevelopmental Community & Discussion
Preparing for Clinical Trials in Neurodevelopmental Disorders
Recognizing Anxiety Behaviors and Calming Strategies & Discussion
Diagnosis and Treatment of Motor Speech Disorders & Discussion
The Role of Augmentative and Alternative Communication (AAC) Systems and Q&A
Understanding Problem Behaviors in Neurodevelopmental Disorders & Discussion
Developing Social and Pragmatic Skills in School Age Children & Discussion
Speed Sharing Brainstorm About What's Working for Managing Behaviors
Foundation Update with Jennifer Sills and Terri Jordan
OCNDS Researcher Presentations
Simons Searchlight Update on the OCNDS/CSNK2A1 Community
Panel Discussion with OCDNS/CSNK2A1 Researchers
Post-Conference Additional Q&A
2020 Simons Searchlight Virtual Conference
General Session 1
Friday, August 7
2-4:00pm EST
Introduction Wendy Chung, MD, PhD
Challenging Behaviors Karen Bearss, PhD
Genetics 101 & How to read your lab report Juliann Savatt, MS, LGC & Rebecca Sheedy, LGC
General Session 2
Friday, August 14
2-4:00pm EST
Introduction John Spiro, PhD
What is Simons Searchlight Misia Kowanda, PhD, MSc, CGC & LeeAnne Green Snyder, PhD
Introduction to SFARI Science John Sprio, PhD
iPSCs Julia Sommer, PhD
Animal Models Alice Luo Clayton, PhD & Britter Gundersen, PhD
Gene Therapies Wendy Chung, MD, PhD
Clinical Trials Paul Wang, MD
CSNK2A1 Meeting
Sunday, August 16
2-4:00pm EST
Simons Searchlight CSNK2A1 Registry Results Jennifer Bain, MD, PhD
Understanding the effect of disease-causing mutations on CK2 function Heike Rebholz, PhD
Genotype-phenotype analysis of OCNDS Sampath Rangasamy, PhD
CSNK2A1 Foundation Update Jennifer Sills
2018 1st Family Conference
Dr. Wendy Chung
Dr. Volkan Okur
Emily Glogowski, MS. MCs, LCGC
Heike Rebholz, PhD