Hello CSNK2A1 community!
Many of us feel uncomfortable or awkward when our loved one with OCNDS is presenting difficult or atypical behaviors in public/social situations where an easy way to share information about OCNDS without talking in front of them, or putting them in an uncomfortable position, would be helpful. The Parent Advisory Board, therefore, created this printable, easy-to-carry awareness card as a tool to help diffuse awkward moments with and/or unwanted intrusions by family, friends, and/or curious onlookers, while spreading awareness. This card is also a great way to let people know that your loved one might need some extra time or help in certain situations.
Examples of when the CSNK2A1 Awareness Card could be used:
You may print these cards on your own printer and/or take them to a local office supply place to be printed. We hope it will be a helpful tool for your family. (Other languages coming soon)
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
CSNK2A1
Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
EIN #82-4220939.
Address: 1929 Van Ness Avenue, San Francisco, CA 94109
Phone:
(415) 501-0147
Email:
info@csnk2a1foundation.org
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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