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CSNK2A1 Foundation Logo

Understanding
Okur-Chung Neurodevelopmental Syndrome

a logo for the csnk2al foundation

Understanding
Okur-Chung Neurodevelopmental Syndrome

OCNDS Family Zoom Calls

Join us for our Bi-Monthly OCNDS Family Zoom Meetings hosted by our Parent Advisory Board.


In these meetings, we discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS. We will be using AI technology for live-caption translation. Most languages are supported by this technology.

January Bi-Monthly OCNDS Family Zoom Call


Join us on Saturday, January 11th for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS.


Register Here

March Bi-Monthly OCNDS Family Zoom Call


Join us on Sunday, March 16th, for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS.


Register Here

May Bi-Monthly OCNDS Family Zoom Call


Join us on Saturday, May 17th, for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS.


Register Here

July Bi-Monthly OCNDS Family Zoom Call


Join us on Sunday, July 13th, for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss the upcoming 2025 Connect + Collaborate OCNDS Scientific & Family Conference and address any questions you may have. Please note the call will be limited to 1 hour.


Register Here

September Bi-Monthly OCNDS Family Zoom Call


Join us on Saturday, September 13th, for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS.


Register Here

November Bi-Monthly OCNDS Family Zoom Call


Join us on Sunday, November 16th, for our bi-monthly OCNDS Family Zoom Meeting hosted by our Parent Advisory Board. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS.


Register Here

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