Volunteer

Support families who are setting up online or ins person fundraisers and events.

Project management, excellent communication skills. Some event planning experience preferred.

Work with families to plan their events.

Event planning

Assist event coordinators with planning, communication, and coordination.

Project planning, excellent communication skills, problem solving

Reaching out to businesses to garner sponsorships for events and conferences.

Excellent written and verbal communication skills

Stay up to date on what other organizations are doing: research, family, support, recruiting strategies, fundraising, etc.

Organizational skills, ability to search via web browsers and compile information

Help with conference planning, promotion, and/or onsite coordination.

Organizational skills, comfort speaking with others, general computer skills

Our regional ambassadors are responsible for building a supportive OCNDS community within their assigned region. Regional ambassadors connect with families as they navigate the social and emotional challenges of diagnosis, treatment, and management. They are a liaison between the families and the foundation, identifying issues and challenges that are unique to specific regions.

Ability to gather and share resources for OCNDS families in your region. Host zoom calls every 6 months and an informal gathering once per year for OCNDS families living within the region.

Parent Advisory Board advises our Board of Directors and Chief Scientific Officer, brainstorms ideas, and shares insights from the parent perspective related to OCNDS.

English-speaking, parent or caregiver of an individual with OCNDS, ability to meet 6x per year, ability to provide written feedback to foundation staff with 1-2 week response times, desire to be a representative of the foundation. 2-year commitment, limit to ages 21+.

Generate a list of updates needed for our website (monthly, quarterly, annually)

Organizational skills, attention to detail

Lead the development of an Amazon Storefront for the foundation including set-up, listing items, obtaining feedback from the community regarding items to promote, sharing the storefront broadly, etc.

Organizational skills, comfort speaking with others, general computer skills, knowledge of using Amazon

Review existing packing on transition to adulthood and provide suggestions for edits.

Organizational skills, attention to detail

Volunteers who are interested in serving in a general capacity. They are willing to serve in any way they can be helpful, and/or they want to be informed of volunteer opportunities in the future.

Varies