Newsletters

As 2024 comes to a close, we’re reflecting on the milestones, achievements, and memorable moments that shaped the year. From major accomplishments and company growth to employee highlights and industry innovations, join us as we look back on the successes of the past year. Here's to celebrating progress and looking ahead to an even brighter 2025!

Explore the CSNK2A1 Foundation’s 2023 highlights—empowering OCNDS families and pushing forward in the fight for awareness, care, and a cure.

In 2022, we proved that no challenge is too great. Discover how the OCNDS community united to drive progress, hope, and life-changing research.

April 5th is International OCNDS Awareness Day! Wear green or blue, share your support online, and watch Niagara Falls light up for OCNDS.

In 2021, OCNDS families faced service gaps and isolation—but through virtual meetings and shared strength, no one walked alone.

Join the global OCNDS community as we celebrate raising over $18,000 during our Run, Walk & Roll event to fund research and raise awareness!

Don’t miss the CSNK2A1/OCNDS virtual conference! Register for sessions on science, therapies, and gene-specific presentations with Q&A and captions.

As 2020 ends, we reflect on a hopeful journey—surpassing 3-year goals, advancing OCNDS research, and growing a strong, connected community.

OCNDS was named just four years ago—April 5, 2016 marks the first publication that brought awareness and answers to families worldwide.