ADA Center Northeast ADA Center Employment and Disability Institute
201 Dolgen Hall Cornell University
Ithaca, NY, 14853
http://www.northeastada.org
Assistive Technology
NYS Justice Center
161 Delaware Ave Delmar, NY, 12054
(518) 549-0200
https://www.justicecenter.ny.gov/services-supports/assistive-technology-traid
New York State Department of Health
Assistive Technology
https://www.health.ny.gov/facilities/long_term_care/waiver/nhtd_manual/section_06/assistive_technology.htm
CHIP (healthcare for low-income uninsured children)
NY State of Health
https://nystateofhealth.ny.gov/
D D Council NYS Developmental Disabilities Planning Council
One Commerce Plaza, Suite 1230 Albany, NY 12210
http://ddpc.ny.gov
Developmental Disabilities
NYS Office for People with Developmental Disabilities
44 Holland Avenue Albany, NY, 12229
Contact form on website
http://www.opwdd.ny.gov/
Early Intervention Bureau of Early Intervention
NYS Department of Health Corning Tower, Room 287 Empire State Plaza Albany, NY, 12237-0660
http://www.health.ny.gov/community/infants_children/early_intervention/
Epilepsy Epilepsy Foundation of Long Island
1500 Hempstead Turnpike East Meadow, NY 11554
http://efli.org
Intellectual & Developmental Disabilities NYSARC, Inc.
29 British American Blvd. – 2nd Floor, Latham, NY 12110
http://www.nysarc.org
Independent Living
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000 Houston, TX, 77019
http://www.ilru.org/projects/silc-net/silc-directory-results/NY
To find out the contact information for centers for independent living (CILs) in your state, contact:
National Council on Independent Living
2013 H St. NW, 6th Floor Washington, D.C. 20006
http://www.ncil.org
Mediation New York State Education Department Office of Special Education
89 Washington Avenue, Room 309 EB Albany, NY, 12234
http://www.p12.nysed.gov/specialed/techassist/mediation.htm
Mental Health NYS Office of Mental Health
44 Holland Avenue Albany, NY, 12229
http://www.omh.ny.gov/
Mental Health Association in NYS
194 Washington Avenue, Suite 415 Albany, NY, 12210
http://www.mhanys.org
NAMI New York State
99 Pine Street, Suite 302 Albany, NY, 12207
http://www.naminys.org
Families Together in New York State, Inc.
737 Madison Avenue Albany, NY, 12208
http://www.ftnys.org
Mental Health – Youth Children’s Services
NYS Office of Mental Health
44 Holland Avenue Albany, NY, 12229
https://www.omh.ny.gov/omhweb/childservice/
Preschool, Disabilities New York State Education Department Office of Special Education
Preschool Unit 89 Washington Avenue, Room 309 EB Albany, NY, 12234
http://www.p12.nysed.gov/specialed/
Protection & Advocacy Disability Rights New York
725 Broadway, Suite 450 – Albany, NY, 12207
25 Chapel Street, Suite 1005 – Brooklyn, New York 11201
44 Exchange Blvd, Suite 110 – Rochester, New York 14614
http://www.drny.org
Relay Services
(800) 421-1220 (V); 711 (V) (800) 662-1220 (TTY); 711 (TTY) (877) 662-4234; 711 (Speech to Speech)
http://www.nyrelay.com
Special Education
New York State Education Department Office of Special Education
89 Washington Avenue, Room 309 EB Albany, NY, 12234
http://www.p12.nysed.gov/specialed
Special Format Books Serving upstate New York
NYS Talking Book and Braille Library Cultural Education Center
222 Madison Avenue Albany, NY, 12230
http://www.nysl.nysed.gov/tbbl/
Special Format Books Serving New York City and Long Island
Andrew Heiskell Braille and Talking Book Library
40 West 20th Street New York, NY, 10011
http://www.nypl.org/locations/heiskell
Special Health Care Needs
Children and Youth with Special Health Care Needs Program
New York State Department of Health Corning Tower Building
Empire State Plaza Albany, NY, 12237-0619
http://www.health.state.ny.us/community/special_needs
Speech, Language, and Hearing
NYS Speech-Language-Hearing Association, Inc.
1971 Western Avenue #1167 Albany, NY 12203
http://www.nysslha.org
State Web Site
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.ny.gov/
Transition Services
New York State Education Department Office of Special Education
Special Education Policy, Transition Services
89 Washington Ave., Room 309 EB Albany, NY, 12234
http://www.p12.nysed.gov/specialed/transition/home.html
UCEDD Westchester Institute for Human Development
University Center for Excellence in Developmental Disabilities in affiliation with New York Medical College
Cedarwood Hall Valhalla, NY, 10595-1689
http://www.wihd.org
Rose F. Kennedy University Center for Excellence in Developmental Disabilities Education, Research, and Service
Albert Einstein College of Medicine
1410 Pelham Parkway South Yeshiva University Bronx, NY, 10461
https://www.einstein.yu.edu/centers/childrens-evaluation-rehabilitation/rose-f-kennedy-ucedd/
Strong Center for Developmental Disabilities University of Rochester
601 Elmwood Avenue, Box 671 Rochester, NY, 14642
https://www.urmc.rochester.edu/strong-center-developmental-disabilities.aspx
Vocational Rehabilitation
New York State Education Department Adult Career and Continuing Education Services, Vocational Rehabilitation
89 Washington Avenue Albany, NY, 12234
http://www.acces.nysed.gov/vr/
Organizations for Parents
Parent Network of WNY
1000 Main St. Buffalo, NY, 14202
http://parentnetworkwny.org
Community Parent Resource Center United We Stand of New York
91 Harrison Ave Brooklyn, NY 11206
http://www.uwsofny.org
The Family Resource Network, Inc (Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins counties)
46 Oneida Street Oneonta, NY, 13820
http://www.familyrn.org
New York State Parent Teacher Association (PTA)
One Wembley Court Albany, NY, 12205-3830
http://www.nyspta.org
Starbridge
1650 South Avenue, Suite 200 Rochester, NY 14620
http://www.starbridgeinc.org
Parent Training and Information Center (PTI) Advocates for Children of New York (New York City)
151 W. 30th Street, 5th Floor New York, NY, 10001
http://www.advocatesforchildren.org
Include NYC
116 E. 16th Street, 5th Floor New York, NY, 10003
http://www.includenyc.org
Parent Training and Information Center (PTI)
Sinergia/Metropolitan Parent Center
2082 Lexington Ave., 4th Floor New York, NY, 10035
http://www.sinergiany.org
Parent to Parent of NYS
500 Balltown Rd. Schenectady, NY, 12304
http://www.parenttoparentnys.org
Easter Seals New York
633 Third Avenue 6th Floor New York, NY 10017
http://www.ny.easter-seals.org
VSA arts of New York City
45 Main Street, Suite 616 Brooklyn, NY 11201
http://www.vsanyc.org
Variety Club New York
+1 (315) 636-0340
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
CSNK2A1
Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
EIN #82-4220939.
Address: 1929 Van Ness Avenue, San Francisco, CA 94109
Phone:
(415) 501-0147
Email:
info@csnk2a1foundation.org
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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