Understanding
Okur-Chung Neurodevelopmental Syndrome
2020 Drive for Diagnosis Golf Classic
With your support, all profits raised will go to ongoing CSNK2A1 Foundation sponsored research. Last year’s tournament allowed us to start the CSNK2A1 Foundation Research Program at TGen. Dr. Vinodh Narayanan and his team through their research are determining whether the symptoms of OCNDS are reversible. The CSNK2A1 Foundation and TGen are working together to use cell lines to model the disease in hopes of finding potential treatments. With your continued support, the CSNK2A1 Foundation Research Program at TGen will give us the opportunity to engage with families, expand on research, provide answers for families with children affected with OCNDS, and move towards developing treatments and a cure.
By your generous donations and support, we are able to fight for the children pictured and those children yet to be diagnosed. We are conducting research that will help reverse, cure and alleviate symptoms for those affected by OCNDS. OCNDS is caused by a mutation on CSNK2A1 gene. CSNK2A1 gene has links to devastating childhood cancers, autism, Parkinson’s Disease and Alzheimer’s Disease. As we work around the clock on breakthroughs, we may have the ability to also impact the lives of those who are suffering from cancer, autism, Parkinson’s and Alzheimer’s.
