Starting when Harper was just 11 months old, Amber began jotting down these moments of progress, what she affectionately termed "inchstones." Over time, this practice evolved into a celebration of Harper's achievements, no matter how minor they seemed in the grand scheme. Now, at 12 years old, Harper's journey is documented, filled with countless moments of growth and resilience.
Through this process, Amber underwent a profound mindset shift. The trivialities that once consumed her attention faded into insignificance, replaced by a profound gratitude for Harper's health and vitality. The journey taught her not to take anything for granted, emphasizing the importance of cherishing each milestone along the way. In essence, Amber's story serves as a powerful reminder of the transformative power of perspective and the beauty found in life's smallest victories. Today is OCNDS Awareness Day. Regardless of where you are in your journey, this will resonate with you. Take a listen today: https://www.disabilityparentingpodcast.com/podcast/episode/34912c83/ep-6-how-my-child-has-changed-me-with-amber-reynolds
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
CSNK2A1
Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
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