Understanding
Okur-Chung Neurodevelopmental Syndrome
Announcing Our Inaugural Parent Advisory Board
We are thrilled to announce we are working on new initiatives for the OCNDS community. We are forming our inaugural Parent Advisory Board. We are looking for caregivers or parents who want to get more involved. This is an exciting opportunity for parents or caregivers of an OCNDS patient to make a difference in the lives of those affected by OCNDS. Parent Advisory Board will advise our Board of Directors, brainstorm ideas and share insights from the parent perspective related to OCNDS.
Commitment :
Commitment :
- For inaugural group, 1 year commitment with one year option to extend
- Meeting Virtual Calls - 1 hour per month
- 5 hours a month minimum for PAB projects
- Two 2-hour virtual trainings (spread out between two months)
Applications are due May 15, 2020.