Building an Army to Find a Cure on The Show Up Society Podcast

Founder and President, Jennifer Sills, talks with Tammie Bennett from the Show Up Society Podcast about her family’s journey with OCNDS and starting CSNK2A1 Foundation.

We thank Tammie Bennett for “showing up” for our OCNDS community and bringing awareness to this ultra rare genetic syndrome.

< Older Post

Newer Post >

Sign Up for Our Newsletter

CSNK2A1 Foundation

We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We are a 501(c)(3) non-profit organization.
EIN #82-4220939.

Contact Information

Address: 1929 Van Ness Avenue, San Francisco, CA 94109

Phone: (415) 501-0147

Email: info@csnk2a1foundation.org

Disclaimer

The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...

Free Genetic Testing | FAQs | Contact Us | Contact Registry