I have 4 kids and my youngest, Kirsty, has OCNDS. Her symptoms include Autism, global developmental delay, speech delay, short stature and learning disabilities. We live in Windsor UK. I work in London as an Executive Assistant. I joined the PAB to share experiences with other families and learn from their challenges and successes, in the hope that more OCNDS families will benefit from the experiences contributed by the PAB. I also wanted to bring a British perspective to the discussions about OCNDS. I enjoy running and cooking with my fabulous daughters Beth and Kirsty.
Understanding
Okur-Chung Neurodevelopmental Syndrome
Claire Whitehill
PARENT ADVISORY BOARD
