Connie Johnson

Greetings! My name is Connie Johnson. Since I basically grew up here, I consider myself a native of Las Vegas, NV, U.S.A.; however, from 2014-2020 my husband, our four boys, and I lived in Macau, China S.A.R. While working with a developmental pediatrician in Hong Kong, my youngest son, Cam who is 10, was diagnosed with OCNDS through a gene test in 2019. Since the time Cam entered school at age 3, I have been advocating for him to receive the necessary support and accommodations that will help him achieve his unique educational goals and for him to continuously improve. At times this has been a challenge, but through my experiences with him, my education (Bachelor’s-Elementary Education and Master’s-Teaching, Elementary Education with a Special Education endorsement), and professional teaching career, I have been able to collaborate with others to get him the support he needs. I am hoping that all of this experience and knowledge will be useful in supporting other families who have children with OCNDS on their journey, especially with educational aspects. As a member of the PAB, I enthusiastically look forward to meeting other families and working with them to bring about an awareness of OCNDS and to help achieve the goals of the CSNK2A1 Foundation.