I am a mom, accomplished musician, gardener and passionate advocate for my daughter with OCNDS. Our journey has criss-crossed from San Francisco, to Southern Ontario and back to Edmonton, Alberta, all the while searching for an answer to our daughter Matilda's developmental challenges. I am excited to be a part of the inaugural parent advisory board, to help all families faced with this rare diagnosis. Our most recent venture and coping strategy involves fostering as many cats and kittens as we can fit into our house until they find FURever homes!
Understanding
Okur-Chung Neurodevelopmental Syndrome
Elisabeth Mellinger
PARENT ADVISORY BOARD
