I am a native New Englander and made my way to Austria in my early twenties, seeking adventure and an immersive way to develop my German skills. Along the way I fell in love and now have 3 beautiful boys. Our second son, Robin, was diagnosed with OCNDS shortly before he turned 2 years old and the experience has driven me to advocacy and providing support for children and families with this rare diagnosis.
Being on the PAB means for me that I will have the opportunity to help families who are also affected by OCNDS. I want to be a part of building a better future for anyone who receives this diagnosis and creating a community of support so that anyone with OCNDS may thrive despite having a disability. My family has been fortunate to receive our diagnosis relatively quickly and at a young age, which means we will gain many experiences for this specific disorder. I also feel fortunate that I have a strong connection to the US as well as German-speaking countries; therefore, I aim to play a large role in making sure that all the foundation has to offer will also be accessible for people who live in German-speaking countries.