My husband, Scott, and I are proud parents to our son, Matthew, and daughter, Claire. We live in Hammonds Plains (near Halifax), Nova Scotia, Canada. In 2018, Claire was diagnosed with OCNDS after 10 years of searching for answers to explain her symptoms. I’m the director of a provincial government agency championing strong and informed government and public action on HIV/AIDS in Nova Scotia. The CSNK2A1 Foundation has been a lifeline for understanding my daughter's diagnosis and connection to a global community of support, advocacy, and research. I am in awe of its accomplishments in such a short period of time. I was drawn to the PAB by a deep desire to "give back" and help other families and individuals affected by OCNDS . My favourite quote: The question should be, is it worth trying to do, not can it be done (Allard Lowenstein).