Understanding
Okur-Chung Neurodevelopmental Syndrome
*NO MOUNTAIN TOO HIGH* 2022 CSNK2A1 Foundation Virtual Run, Walk & Roll
JOIN US!
Join our worldwide Okur-Chung Neurodevelopmental Syndrome (OCNDS) community on OCTOBER 15TH and OCTOBER 16TH for our NO MOUNTAIN TOO HIGH for OCNDS Run, Walk & Roll! This event will help raise awareness and fund research for OCNDS, an ultra-rare genetic disease that affects individuals worldwide.
DO I NEED TO RUN TO PARTICIPATE? Absolutely not! This is called a run, walk, or roll. Our goal is for you to safely come together with others to bring awareness to OCNDS. Invite some friends and family to join you to move into action TOGETHER for OCNDS. You can meet at the park, your street corner, the beach, or anywhere – get out of the house and move! You can RUN. You can WALK. You can ROLL whether on a bike, wheelchair, walker, scooter, roller skates, or rollerblades.
What is our theme for the year? Our foundation theme for the year is NO MOUNTAIN TOO HIGH . We intend to find a treatment and a cure for OCNDS. We will tackle any obstacles in our way and stop at nothing until we find one. Send us your photos of you with your friends and family shouting OCNDS from around the globe bringing awareness to OCNDS.
WHY RUN, WALK or ROLL? WHY DONATE? OCNDS is a lifelong condition that significantly impacts the lives of those affected and their families. There is no treatment or cure – YET! We are living in a time where genetic conditions thought to be incurable are now being treated. Together we have the chance to fund life-changing research and increase global awareness.
Proceeds benefit the CSNK2A1 Foundation, whose mission is to raise awareness and funds to support research that leads to actionable treatments which will make a meaningful difference in the lives of those affected by OCNDS.
STEPS TO PARTICIPATE:
Step 1. Register to run/walk/roll the virtual 5k or 1 mile , and invite your family and friends to join! Give your t-shirt size and mailing address.
Step 2. Invite your friends and family to join you and register.
Awards to be given for: *Loudest Family/Individual on Social Media, *Top Fundraiser, and *Most Liked Photo on Social Media
PRICING : $25 per adult registrant, $15 per child (2-18) registrant
Each registration fee includes (1) Move Into Action Event T-Shirt and (1) digital race bib. For example, if you register (2) adults and (2) kids, you will receive (4) t-shirts and (4) digital race bibs. Due to shipping challenges, we can only guarantee T-shirts for those who register BEFORE October 01, 2022.
DO I NEED TO RUN TO PARTICIPATE? Absolutely not! This is called a run, walk, or roll. Our goal is for you to safely come together with others to bring awareness to OCNDS. Invite some friends and family to join you to move into action TOGETHER for OCNDS. You can meet at the park, your street corner, the beach, or anywhere – get out of the house and move! You can RUN. You can WALK. You can ROLL whether on a bike, wheelchair, walker, scooter, roller skates, or rollerblades.
What is our theme for the year? Our foundation theme for the year is NO MOUNTAIN TOO HIGH . We intend to find a treatment and a cure for OCNDS. We will tackle any obstacles in our way and stop at nothing until we find one. Send us your photos of you with your friends and family shouting OCNDS from around the globe bringing awareness to OCNDS.
WHY RUN, WALK or ROLL? WHY DONATE? OCNDS is a lifelong condition that significantly impacts the lives of those affected and their families. There is no treatment or cure – YET! We are living in a time where genetic conditions thought to be incurable are now being treated. Together we have the chance to fund life-changing research and increase global awareness.
Proceeds benefit the CSNK2A1 Foundation, whose mission is to raise awareness and funds to support research that leads to actionable treatments which will make a meaningful difference in the lives of those affected by OCNDS.
STEPS TO PARTICIPATE:
Step 1. Register to run/walk/roll the virtual 5k or 1 mile , and invite your family and friends to join! Give your t-shirt size and mailing address.
Step 2. Invite your friends and family to join you and register.
Awards to be given for: *Loudest Family/Individual on Social Media, *Top Fundraiser, and *Most Liked Photo on Social Media
PRICING : $25 per adult registrant, $15 per child (2-18) registrant
Each registration fee includes (1) Move Into Action Event T-Shirt and (1) digital race bib. For example, if you register (2) adults and (2) kids, you will receive (4) t-shirts and (4) digital race bibs. Due to shipping challenges, we can only guarantee T-shirts for those who register BEFORE October 01, 2022.