Understanding
Okur-Chung Neurodevelopmental Syndrome
OCNDS/CSNK2A1 Foundation Brochure
Receiving an OCNDS diagnosis can be overwhelming and heartrending . Our Parent Advisory Board (PAB) understands how difficult it can be to navigate an OCNDS diagnosis. To help families on this journey, our PAB developed an OCNDS/CSNK2A1 Foundation brochure.
This brochure can be shared with your family, friends, teachers, providers, and clinicians to learn more about OCNDS. Please share our new brochure far-and-wide.
Thank you to our PAB for creating this helpful tool for our community. It will be available in multiple languages soon.