Please join
NORD, National Organization for Rare Disorders
, for this engaging webinar on dental conditions associated with rare disorders. We will hear perspectives from a patient with ectodermal dysplasia, a patient and advocate with pemphigus vulgaris and a dentist who treats rare oral disorders. This NORD webinar is suitable for patients, caregivers, advocates and the public. Click the link below to register.
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
CSNK2A1
Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
EIN #82-4220939.
Address: 1929 Van Ness Avenue, San Francisco, CA 94109
Phone:
(415) 501-0147
Email:
info@csnk2a1foundation.org
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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