Understanding
Okur-Chung Neurodevelopmental Syndrome
Spotlight on Rhiannon Cramer
Rhiannon Cramer is the head liaison for the closed OCNDS Facebook group. She created the Facebook group in 2016 to help families connect after her daughter, Cordelia, was diagnosed with OCNDS. Cordelia was the one of original five children identified in the first published research paper describing OCNDS. We are grateful to Rhiannon for connecting our community and creating a place where we can share ideas, ask questions, celebrate successes and seek support.