💗Today is Giving Tuesday

Dear Friends, Supporters, and Donors,

Today, November 30th is Giving Tuesday. Giving Tuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On this #GivingTuesday, will you help us find a cure for OCNDS and ensure no family walks alone on this journey?

"Nothing about Rare Disease is simple - not the diagnosis, not the daily care, not the long term." For #GivingTuesday, we are highlighting the power of connection when living with a rare disease and are raising $50,000 to fund a robust translational research program that will improve the lives of those living with OCNDS.

Every rare disease family has a unique story to tell about their rare disease journey. On average, it takes seven (7) grueling years for a family to receive a diagnosis. OCNDS takes a toll on families financially, emotionally, spiritually, and mentally. Rare life can be extremely hard, isolating, and heartrending.

Finding a community can make all the difference on this rare disease journey. It is life-changing when someone understands your rare disease journey. Part of our mission is to foster connection and community for OCNDS families. We do this through annual meetings, monthly family zoom calls, webinars, and peer support.

Time is of the essence. We need to find treatments or a cure for those living with OCNDS. From November 30th - December 31st, your gift will have DOUBLE the impact! Joan and Charlie Davis are matching gifts up to $50,000. Act now to fund twice as many life-changing OCNDS research programs!

Thank you for helping us turn hope into action!