Words that Come to Mind as I Reflect on my Filip for Rare Disease Day

By: Karolina Zwolinska, OCNDS parent from Poland
cheerful sunny helpful fight for the best health math problem outbursts of anger and outbursts of happiness

I love him more than life, and I can't imagine my life without him

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CSNK2A1 Foundation

We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We are a 501(c)(3) non-profit organization.
EIN #82-4220939.

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Address: 1929 Van Ness Avenue, San Francisco, CA 94109

Phone: (415) 501-0147

Email: info@csnk2a1foundation.org

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