Understanding
Okur-Chung Neurodevelopmental Syndrome
April 5th is International OCNDS Awareness Day
Save the Date – April 5th is International OCNDS Awareness Day
Why is April 5th OCNDS Awareness Day? On April 5, 2016, lives were changed forever. On this day, 6 years ago, the first paper was published describing a brand new syndrome called Okur-Chung Neurodevelopmental Syndrome, also known as OCNDS. Initially, there were 5 children identified in the paper with OCNDS. Soon these 5 children would be joined by others around the world.
This year’s theme is “No Mountain Too High.” Tune in on April 5th to learn more.