Understanding
Okur-Chung Neurodevelopmental Syndrome
Monthly OCNDS Family Zoom Call – April
Join us Saturday, April 9, 2022
, for our monthly OCNDS Family Zoom Meeting. We will discuss successes, challenges, and all things OCNDS. This meeting is only for primary caregivers, guardians, and those living with OCNDS. All languages welcome.
We will be using AI technology for live-caption translation.
When: Apr 9, 2022 08:00 AM Pacific Time (US and Canada)
Register in advance for this meeting here .
After registering, you will receive a confirmation email containing information about joining the meeting.
Best Practices for a Successful Call:
We will be using AI technology for live-caption translation.
When: Apr 9, 2022 08:00 AM Pacific Time (US and Canada)
Register in advance for this meeting here .
After registering, you will receive a confirmation email containing information about joining the meeting.
Best Practices for a Successful Call:
- Use a computer or laptop if possible. Works well with Chrome, Firefox, Safari or Edge. A cell phone will make it challenging to participate because you will only be able to see the translation screen or the zoom screen but not both screens at once.
- Speak slowly and clearly.
- State your primary language (pause a couple of seconds)
- To introduce yourself: please say your name, country, person with OCNDS’s name and age, 1 challenge and 1 success (up to 1 minute)
- Think about what you will say before speaking to help with ease of translation.
- Make sure you are in a quiet place so the translation technology can hear you. Try to avoid having music in the background.
- Avoid talking over other speakers. Stay on mute when not speaking.
- Privacy, confidentiality, and safety are of the utmost importance during these family zoom calls.
- The meeting will last for 90 minutes.