Understanding
Okur-Chung Neurodevelopmental Syndrome
Call to Action! Sign up for the CSNK2A1 Natural History Study
Each genetic variant is important! In order to be represented in research, you must participate in research!
Answer the call to action and sign up for the CSNK2A1 natural history study .
Answer the call to action and sign up for the CSNK2A1 natural history study .
We highly encourage our community to register with Simons Searchlight to participate in the Simons Searchlight long-term natural history study. By participating in the Simons Searchlight study, we can improve our community’s understanding of OCNDS.