Understanding
Okur-Chung Neurodevelopmental Syndrome
Celebrating Rare Disease Day in the Rio Grande Valley, Texas, USA
by Erica Lee Trevino
“My son, Jordan is 6 years old and has OCNDS. I want to bring awareness to our community about OCNDS. Today, here in the Rio Grande Valley, we held an awareness event at his elementary school. It made me feel so amazed how much support he had from his own school and classmates. It is incredible that yesterday they didn’t know what OCNDS was and now, today, they do!”