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Understanding
Okur-Chung Neurodevelopmental Syndrome

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Understanding
Okur-Chung Neurodevelopmental Syndrome

Days by Rhiannon Cramer

Rhiannon Cramer

by Rhiannon Cramer

Days



The sun rises up, the sun lowers down The child does not sleep The child breaths and that is our need
The sun rises up again
The physical therapist comes again The occupational therapist comes again The doctor appointments to be made again
The sun is at midday
The feeding therapist comes again The vision therapist comes again The speech therapist comes again
The sun is now near the end
The tear filled cuddle fit in The work fit in The chores fit in
The sun lowers down once again
But where was the day? But where was the fun? But where was the freedom for the child?
The child does not know otherwise
These are the days full of therapists that keep the child going These are the days full of doctors that keep the child going These are the days full of phone calls that keep the child going
These days, allow for those future days
Those future days are what we work for Those future days are for the fun Those future days are freedom for the child

The future days are soon to come

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