Rare comes in all different shapes and sizes, same with best friends! Ava loves the company of her two best friends, Hero and Ranger�55357;�56382;She enjoys walking them, playing with them and feeding them. They make her laugh every single day! They have taught her to be patient, they have taught her a different meaning of love and how to navigate her anxiety. Luckily with these two by her side, she can conquer anything�55357;�56473;�55357;�56474;
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives.
CSNK2A1
Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
EIN #82-4220939.
Address: 1929 Van Ness Avenue, San Francisco, CA 94109
Phone:
(415) 501-0147
Email:
info@csnk2a1foundation.org
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
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