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Understanding
Okur-Chung Neurodevelopmental Syndrome

a logo for the csnk2al foundation

Understanding
Okur-Chung Neurodevelopmental Syndrome

I Ruff Someone Rare

I Ruff Someone Rare

By Melanie Kretas / artwork by Ava
Rare Disease Day Reflection
I �55357;�56473;RUFF�55357;�56474;someone rare!

Rare comes in all different shapes and sizes, same with best friends! Ava loves the company of her two best friends, Hero and Ranger�55357;�56382;She enjoys walking them, playing with them and feeding them. They make her laugh every single day! They have taught her to be patient, they have taught her a different meaning of love and how to navigate her anxiety. Luckily with these two by her side, she can conquer anything�55357;�56473;�55357;�56474;

A child 's drawing on a piece of paper with numbers and letters
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