Understanding
Okur-Chung Neurodevelopmental Syndrome
Save the Date for Rare Disease Day February 28, 2019
Come celebrate with The Sills Family
&
WHAT?
Rare Disease Day is to raise awareness for rare diseases and their impact on the lives of patients and families.
WHY?
Our sweet Jules was diagnosed with a rare genetic disorder in 2016. 1 in 10 people are diagnosed with a rare disease. We all know someone who is affected. Let’s come together to learn more about each other and support each other on this journey.
WHO?
For Everyone. All ages.
WHEN?
Thursday, February 28, 2019 ~ 3:30pm-7pm
WHERE?
Hillsborough, California